Hello and Welcome to My Health Gen, a website for you to meet people diagnosed with the same or similar medical condition to share your journey. We hope you will find interesting and friendly people who have a similar diagnosis, with experience that they might share or be someone you can talk to for support or guidance in managing your journey.
Meet and chat with friends
MyHealthGen offers a secure, online environment for members to meet new people, exchange ideas and find advice and support. You can create a customised profile, find others diagnosed with similar medical conditions and exchanged ideas and information using the messages feature.
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Join groups and share your experience
MyHealthGen is a great place to discuss medical issues with others in a similar position. You can create and join discussion groups relevant to you, find advice, exchange ideas and share experience. MyHealthGen is all about social networking for shared wellbeing
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Find help and support
Alongside our great networking features you’ll also find a range of support information posted to the MyHealthGen noticeboard. The site also contains a directory of charitable and support organisations that other users have found helpful. Both areas are continually being updated, so as a member of MyHealthGen you’ll enjoy regular access to a wide range of support resources.
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MyHealthGen Principles
Myhealthgen was started to help us all better understand our journey and experience as patients. You may find people who live near you and/or have the same diagnosis, giving you the opportunity to share information and/or experience. We all have so much to offer each other.
You can be either diagnosed with a condition or a carer to make maximum use of this site.
When you register you need to create a Profile. At all stages you are in charge of the information you provide. Basic information, (your username - which might be an alias, your primary diagnosis, your sex and UK county of residence), is needed so you can make contact with other people. We hope you will find it easy to set up a profile which you can share progressively as your choose.
You can update your profile whenever you wish. The information boxes on the site are for your convenience. MyHealthGen only needs the basic information completed. You can search using anyone of these items Uploading a photo is your choice or you can choose a colour to represent you if you prefer.
Having created a Profile on MyHealthGen you can search for people with the same diagnosis, seek advice and offer your experience. If you can’t find your condition let us know and we will include it info@myhealthgen.com.
A Noticeboard will carry public messages from people and will be available 24 hours after they have been sent to the site.
MyHealthGen offers you the opportunity to engage in one to one conversations with people
You can start a Group. As “administrator” you are not obliged to manage the group. This title simply means you started the Group, but you can choose to make it a public or private Group. It can be a forum for friends (this will be private so that only they can join) or public where everyone can join to discuss and share matters of mutual interest. Having started a Group you have no responsibility to make it work or to monitor the discussion. It is a forum for people to responsibly express their views.
We will make sure your information is always secure but when you share information with others, we cannot guarantee its confidentiality any more. Please let us know if you feel you or your information is being mistreated, mail info@myhealthgen.com
We provide links to charities that you might find useful but cannot be responsible for these web sites.
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Safety
Myhealthgen offers an environment for members to meet like-minded people, get support, have fun and, hopefully, make special relationships. We know though that joining social sites can seem like a big step and, from time to time, people have safety worries. With that in mind here are some guidelines for safer networking.
- Use common sense. Social sites aren’t really all that different from meeting people in the real world. Some people will interest you and some won't. The key thing to remember is that your personal safety is paramount so trust yourself. The vast majority of people are here for the same reasons you are. If you're at all unsure about a person however, then don't take a risk
On the site
- Be in control. MyHealthGen allows you to talk to other members anonymously. If you get on with someone you may eventually want to exchange numbers, email addresses or even meet up but make sure you're totally comfortable before you do. If another member is going faster than you feel happy with, just tell them - you're all in the situation and they'll understand.
- Be honest. People can feel betrayed if the person they've been talking to on the site turns out to have lied about their situation. Keeping it honest from the start helps ensure you'll have a better chance of getting the best support for you.
- Be aware. If you feel that another member is using the site inappropriately or has made you feel uncomfortable then tell us. You can also block any member from contacting you.
In the real world
- Meet in public. As attractive as a night in with a home cooked meal may sound, keep your first meeting or two in places where there are other people around.
- Tell a friend. You'll feel more comfortable if someone else knows where you are.
- Make your own way. Your ‘friend’ may offer to pick you up but initially at least sort your own transport to and from the meeting.
If you use common sense then you'll have a great time using MyHealthGen. If you ever have any concerns though our online support team will be happy to hear from you. You can reach them at info@myhealthgen.com
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